A central hub to help individuals and families navigate the first year following an autism diagnosis.

For decades, one of the most common issues in autism has been the lack of quality information and guidance available to parents and individuals seeking, and receiving, an autism diagnosis.

Thrown into a world of Google, full of misleading and inaccurate information, people are left feeling helpless, confused and frustrated at a time when they are at their most vulnerable. They spend countless hours and funds seeking the best information and resources that should be readily available.

Autism Awareness Australia intends to change that by developing a digital toolkit, a central hub to help individuals and families navigate the first year following an autism diagnosis. Delivered via an interactive website, we will ensure people have access to the best quality, evidence based information and resources to ensure they are empowered to support themselves or their loved ones on the spectrum.

In June 2020, we launched a survey to inform the development and design of a digital toolkit called Autism…What Next? The survey was designed to hear from three groups – parents & carers of autistic children, autistic adults and autistic parents with autistic children. Over 950 respondents told us about their diagnosis experiences and what features and information they would want from the toolkit which will help inform this project and make the process easier for families and individuals in the future.

Read the full summary report here. 

This project is developed by Autism Awareness Australia, supported by Amaze and funded by the NDIS as part of Autism Connect.